Tuesday, October 13, 2009

A Bella Update

I have been getting a lot of emails from people asking about Bella. Thank You! You have no idea what those emails- full of your thoughts, prayers and concerns- mean to Marc and I. I have wanted to wait until I actually had something to report. Bella's fevers are coming closer and closer together and they are harder and harder to fight off. She has had three fevers in the last three weeks- all of which have gone above 106 degrees! It is misery for Bella and so hard on us watching her go through this. Not to mention, Marc and I are growing more and more concerned about the effects that the prednisone will have on Bella in the long term. As I have mentioned previously, the rheumotoligist that diagnosed Bella with PFAPA has relocated to Israel. We felt as though this put up a road block for us as far as getting more in-depth into her condition. The rheumotologist had told us previously that in all of the case studies that they have done, tonsillectomy was successful in eliminating future fever attacks (although they don't know exactly why) in a large percentage of patients.

At our last appointment with our pediatrician we had discussed how Bella's fevers were getting worse and coming closer together. We had expressed our concern over Bella taking more prednisone than we were comfortable with, being that she is having the fever attacks more frequently. The pediatrician shared our concern. When I brought up the idea of the tonsillectomy he said "So let's do it!" I informed him that we were told no doctor would do the surgery until Bella was at least four. He told us he would call Bella's Otolaryngologist and discuss the matter and see what they could work out. Late one evening the pediatrician called me and told me to call Bella's Otolaryngologist (ENT) and set up an appointment. Oh! I was excited but I didn't want to get my hopes up.

Well, today we had our appointment with Bella's ENT and it went very well! He was very knowledgeable about PFAPA and knew what the success rate was for patients with PFAPA that have undergone tonsillectomy. Although it was a little discouraging to hear that the success rate is actually only 60-64%, Marc and I are still very hopeful! We had discussed with him the issue that Bella has with her left ear oozing gross stuff right before her fever peaks. He knew exactly what we meant so he will be removing her adenoids as well. The left ear is the ear that Bella only has 40% hearing in, so he is going to take a very good look when she is under anesthesia and if there is something he is able to correct, he will take care of that at the same time. The goal is to "fix" everything he can at once so as to not have to put her through any more surgeries than we have to. We want to make this as least traumatic for her as possible. She has been through so much in her short three years as it is.

The scheduler will be calling me to set up a day and time for Bella's surgery. I do not know yet exactly when it will be but I know it will be soon. They will be keeping her at the hospital after the surgery, at least one night, for observation- which makes me feel better. Just like with any surgery there are risks involved. And we do not have a 100% guarantee that this is going to "cure" Bella. Marc and I have weighed the "risks verses benefits". We are at the end of our rope. We want resolve for Bella so that she does not have to suffer through these attacks any longer. We do not want to keep her on this prednisone- not knowing how it could effect her. We want her to have a normal, happy, carefree childhood.


Marc and I are faithful that this is going to work for our little girl. We are praying that God lays His healing hands on her and guides the doctor's hands the day of her surgery. We pray that this surgery is a success and that Bella will fall into that 60%!!!! Surgery of any kind scares the daylights out of me but I am trusting in the Lord with all that I have and placing Bella in His care.
I will keep you all posted!!!
Blessings,
Heather:)

Friday, September 25, 2009

Dress Up

Bella came down the hall today looking like this.......

She loves to play dress up.

She comes up with some pretty.......umm.........interesting, err- amazing outfits.

She is always so proud of them. So am I. Kyle likes to get in on the fun too. At least today he was a fireman and not a super hero in a tutu. I only wish I were kidding about the tutu.


They crack me up.

While taking pictures I turned to check on Cali and this is what I saw...........



I think I am ready to replace all of my furniture with bean bags and mattresses on the floor. Seriously.



Another little dare devil monkey. LOL
I hope you all have a wonderful weekend!!!!
Blessings,
Heather:)

Thursday, September 24, 2009

Fall Into Comfort

I have been sick for well over a week. It started with a mild sinus infection, then last Saturday I got hit hard with a bad cold. Double the fun. I am still feeling yuck but I do have my voice back which is a plus. Well, not for Marc or the kids, but for me it's a big deal! LOL

So, what does one do while trying to rest and recuperate? I have been searching high and low for all sorts of decorating ideas. Ideas and items to cozy up my house so that we can invite the cooler months in style. I love to make my home cozy and comfy- but Autumn especially makes me feel the urge even more. Even if all the decorating I do is only in my mind. It is fun to flip through the magazines, look online, and stroll through fabric stores and home decor isles.

Jo-Ann has some wonderful fabrics in their Home Decor line! And the price ain't too shabby, either!
Here are some pictures that have inspired me...............


















Hmmm.... I just noticed a theme of dark woods and neutral color palettes. Funny. Now, if you will excuse me, I am going to go crawl onto the couch and try and rest some more.



Welcome Fall!!!
Blessings,
Heather:)

Thursday, September 17, 2009

Update & Some Silliness

First of all- thank you all for your prayers for my Grandpa and Grandma. My Grandpa woke up Saturday morning and his leg felt better so he said he was not going to the emergency room. The family respected his decision. Monday he went in for blood work and things looked good. He went to a doctor's appointment and was told that the charlie-horse like pain was, more than likely, a side effect of his cortisone shot. If he experiences the pain again they have to keep an eye on it and make sure that it does not feel warm as that could indicate a blood clot. So, for now, everything sounds good! Praise the Lord!

Cali started something new today that almost had me in cardiac arrest. I turned my back and saw that she was on the couch!!! So we have officially added a new monkey to our zoo!!! I keep taking her down and she keeps climbing back up! So, Kyle and I stacked pillows on the floor all around the sofa in hopes she would have a soft place to land if she fell. Aahhhhh! My arms and back are so sore today from removing her multiple times! I should look like Hercules pretty soon.
After awhile she felt defeated and steered away from the sofa....................and found a new place to climb....................

Still not the safest thing but it is much lower to the ground at least!!

She was shaking her body back and forth trying to get the truck to move so big brother stepped in and pushed her around. She had a ball!
After I laid Cali down for a nap I came back out to the living room to find Kyle and Bella playing with the camera. When I downloaded the card onto the computer I laughed hysterically.

They had had a pretty good time it looks like!!

Now, once I get a new camera the kids won't be using it, but this camera is on it's last leg anyway. The screen turns black every 4 or 5 pictures and I have to give it to Kyle to let him work his magic- he is the only one who can get it to work again!! Maybe the old camera should be passed down to Kyle. He seems to enjoy being a photographer...........and being photographed!!!
Have a great Day!
Blessings,
Heather:)

Friday, September 11, 2009

Please Pray

I am asking for prayer for my Grandpa. He has had a charlie-horse-like pain in his leg all day today. My mother got in touch with the doctor and they think it may be a side effect of a cortisone shot he got last week. His heart is in A-FIB and he just started a new medication for that last evening. He is going in for a CAT Scan tomorrow morning to see what is going on. Please keep him in your prayers. Please pray for my Grandma as well- she is a nervous wreck. I guess we all are.

Thank You!
Blessings,
Heather

Thursday, September 10, 2009

Back to 1875

Marc and I like to stalk the MLS. Some houses are in our price range while others are just a dream. When we see some we like we take a drive and explore until we find them. A couple of weeks back we saw this old gal and we drove to see her. All the years that I have lived in this area I never even knew this street existed. The street itself was hidden, nestled among lots of old trees, almost in the center of town. From the main road- this street appears to be a driveway for another house, when indeed there are several houses on the street- all from the same era.

We pulled in the driveway and she sat there on a wooded lot, looking like a sweet little dollhouse. Built in 1875, this home must have so many stories to tell.


I love the facade and the cute little stone path leading to the front door.


And the front door really does look as though it belongs on a dollhouse.

On the left side of the house there is a side entrance that takes you into the kitchen. The kitchen has white cabinets, steel counter tops and a stove that looks like it has been there since the kitchen was added. A row of windows above the kitchen sink would actually make doing dishes enjoyable- to me anyway!
But if you look closer you will see this is more than a cute house......

It is a large bank account ready to be emptied. This old gal has fallen into a condition that breaks my heart. With chipped and peeling paint, loose shutters, cracked windows, rotted wood siding, and a saggy roof. I can only imagine what repairs the inside requires. Although from peeking in the windows I saw amazing paneled walls, multiple fireplaces, and wide planked floors. Ahhh

On the right side of the house there sits a cute little stone patio. I could imagine sitting out there eating dinner, drinking a glass of wine and watching over the garden. So many possibilities for decorating. Oh my!


The garden and landscaping is so overgrown it was hard to tell what shape the foundation was in.


Marc and I were tickled with the little angled windows upstairs. Funny.


We were in awe of the whole house.........and the lot. Staring at the house envisioning what it could, someday, look like. Trying to calculate in our heads how much money it would take to get it to that perfect little vision we had in our minds. We would say things like "The roof would need to be replaced", "Wonder how many gallons of paint it would take for the outside", "How many hours of scraping do you think we would have", etc etc etc. Then after awhile of silence Marc and I both looked at each other with disappointed faces and both shook our heads no. We were in agreement. But we weren't happy about it.

All I wanted to do was wrap my arms around her and tell her everything was going to be fine and that I would take good care of her. But my bank account will not allow me to make that promise.
Someone used to love this house. Someone used to work hard tending to her every need. Lovingly planting and weeding the gardens, freshening her paint, washing her windows.


But that must have been awhile ago. Now there are trees growing out of the air conditioning unit...


And from the roof on the garage.


And, seriously- how cute is that garage, anyway? Even if the roof is covered with moss and baby maple trees.
The back yard was fantastic. Unfortunately I didn't get many photos of it.

Because we were distracted by these little cuties....


Who didn't seem to be bothered by us, at all.


They just kept doing what they were doing- under mamma's watchful eye.


Even though we were just feet from them- they acted as though they weren't afraid of us at all.

Until they heard my kids. LOL!!
Oh to take the house back to 1875...... when she was fresh and new and looking beautiful. Wouldn't that be wonderful?
Have a great day everybody!
Blessings,
Heather:)

Sunday, August 30, 2009

My Cup Overflows











I mean, really, how lucky (blessed) can one girl get?!?!
Blessings,
Heather:)

Tuesday, August 4, 2009

Happy Birthday

My big sister is five years older than me. She is my only sister- and quite honestly, I could not have asked God for anyone better. She is so many wonderful things wrapped into one package.

She is my best friend, my wing man, the person I look up to. She is an amazing Mom to her two daughters. I look up to her for the way she has mothered her children. I have gotten so much good advice, so much support and strength from her in my own journey through mommy hood. I have learned so much just by watching her.

She is a preschool teacher like no other- she comes up with the most amazing lesson plans, she captures the children's attention and they learn so much from her! I had the wonderful opportunity to work with her for awhile and I was always amazed when I watched her work.

She is a go-getter. Once she sets her mind to something she accomplishes it. She is a writer- a great writer. She writes amazing children's books. She has wanted to be a published author for as long as I can remember. A few years ago she self-published a book of hers. Later, she self-published her second and now her books are being sold on Barnes and Noble, Amazon, etc. She even went on book tours. She would travel the state going from school to school telling about her books, and once again- captured the attention of all who was in attendance.

She is a creative genius. Seriously. The girl can do anything from writing children's books to sewing to scap-booking to polymer clay creations. She comes up with the most amazing ideas and quickly puts them into play. She does so with such grace that it looks as though she puts no effort into it- but she does.

She is an awesome photographer. She really has "the eye" and captures moments with her camera that most people can't see on their own. Not to mention she is the only person who has ever been able to get a picture of all three of my kids with their eyes open. She's gooooood.

She used to help me with my homework and stuck with me until I figured it out. I used to confide in her with my boy issues. She helped me get ready for prom- and when the barrette wouldn't stay in that first year, she hot glued it into my hair. LOL! I have so many memories of my sister, I couldn't possibly list all of my favorites.

She has always been there for me. She has always guided me and "held my hand"- even when she didn't realize she was. She has always told me like it was- even if she knew I wouldn't like her answers. I have always respected that quality in her.

I have always looked up to my big sister. Even now, as an adult, I still look up to her. And I think I always will. She means more to me than she will ever know. She has taught me more than she will ever know. She has inspired me more than she will ever know. Her friendship means more to me than she will ever know. And I love her more than I could ever, ever express with words. How could I possibly describe a person who I feel is possibly one of the best people on the planet earth?



HAPPY BIRTHDAY O SISTER GORGEOUS ONE!!!!!!! I love you to the moon and back. Seriously.
Oh- and I am really sorry again that I drew apple boobs on your perfect horse drawing. ;)
Love
Heather:)

Saturday, July 25, 2009

Miscellaneous Parts- Surprise Surgery

Monday morning I had a meeting with our investor at the flip house. We were meeting a realtor who was going to do an evaluation for us. The meeting did not go well, as far as I was concerned, and I left overwhelmed. When I got home I laid the kids down for a nap and I laid on the couch feeling mentally and physically drained. Monday evening after we put the kids to bed, I went to bed. I could not fall asleep. Around 3 a.m. I started having excruciating pain in my abdomen. Pain that had me doubled over and curling up in a fetal position trying to find relief. I was so nauseous I kept running to the bathroom. I would compare the pain to labor pain but sharper, more stabbing pain. I felt like crying but couldn't- the pain was so bad it literally took my breath away. Around 7:30 a.m. the pain eased a little but didn't really stop.


My friend Krissie called and I told her about my night. She told me I needed to call my doctor and get an appointment asap as it sounded like my appendix. I told her I thought it was just stress. She persisted and was so adamant about me calling my doctor that I got off the phone with her and called the doctor's office and made an appointment. When I gave the receptionist my symptoms she insisted I come in within the hour. I called Marc home from work to watch the kids and went to my appointment. I saw an internal medicine specialist who asked a lot of questions and did an exam that made me come up off the exam table. He told me that he was almost 100% sure it was my appendix and instructed me to go home and pack a bag and head to the emergency room. I called Marc on my way home and told him what was going on. He had the kids ready when I arrived and we headed for the emergency room.


I didn't have to wait long to be seen. They took me back pretty quickly and started testing almost immediately. Blood work, urine samples, etc. Marc's Aunt came to the hospital and picked up the kids and took them to her house. I was given a contrast to drink to prepare me for a CT and they inserted an IV in my arm. The contrast drink was horrible. It tasted like lemon Pledge and took me awhile to get it all down. Not something you want to drink- especially since I was already nauseous. I had to wait two hours after drinking the contrast before I could have my CT done- to make sure that the contrast was clear through my system. After the two hours they wheeled me in to have the CT done. More contrast dye through my IV.........oh my! If you have ever had that done it is awful! The contrast ,that they put through that IV, makes you feel like your insides are literally on fire and I could taste alcohol in my mouth. It was miserable.


The CT results were back pretty quickly. The nurse was reading them and shaking her head as she was walking into my "room" in triage. "Your appendix looks pretty bad and needs to come out- tonight. The OR is being prepped and they will call when they are ready for you."
I cried. I am terrified of surgery, of needles, of knives, of anesthesia. All of it. The nurse said "It's going to be fine honey. We are all walking around with miscellaneous parts. You won't even know it's gone." I wasn't crying because I was going to miss my appendix. I was crying because I was afraid. Really afraid. And, of course, really tired. She explained that the appendix had not burst yet so they were planning on going in laproscopically- but if the condition changed, they would have to "open me up". I told her not to tell me anything else. I didn't want to know. I looked at Marc for comfort but he looked concerned too.


Fifteen minutes later they were taking me into the Operating Room. I was really worked up by this point and they had to give me a "relaxer" in my IV to calm me down. The last thing I remember is this sweet woman's face introducing herself "Hi. My name is Vivian. I am going to be your anesthesiologist and we are going to have some fun tonight! Okay?" I don't remember if I responded..... but I do remember thinking that she had a very messed up idea of fun.


I woke up in the recovery room but don't remember anything until I got to my own room. Marc was there and I loved that he was the first thing I saw. He was there for me- just like always. He immediately started telling me that the kids were having fun at their aunt's house playing with their cousins. He knows what I want to hear! My mom was on her way and was going to stay for a couple of days to help with the kids until I felt a little better. I stayed in the hospital until Thursday evening. The doctor acted as though they would keep me another night so I was excited when the nurse told me it was my call and I could go home if I wanted. I missed my kids. I wanted to be in my own bed. And Kyle's birthday was Friday- I couldn't be in the hospital on Kyle's birthday.


Marc stopped at the pharmacy on the way home and filled my prescription for Percocet. I had hoped to not need it but unfortunately I have had to take it every four hours just to stay ahead of the pain. I don't even like to take Tylenol when I get a bad headache so this whole narcotics thing is really making me nuts. I am on a weight restriction- no lifting anything over 15 pounds. Have I mentioned that Cali is almost 25 pounds??? LOL!!! No driving until I go back to see the surgeon in two weeks. I have to check my temperature a few times a day to make sure I am not getting an infection. Most of all- drink lots of clear liquids and take it easy. Hmmmm. That is going to be a hard one but lucky for me I hurt way too bad , am way too tired and have nooooooo energy to disobey those doctor's orders! So I will be a good patient because I do not want to end up back in the hospital any time in the near future. Or the far future as far as that goes!


I am so very grateful to have such wonderful family and friends, and to be surrounded by such a fantastic medical community. As scared as I was ,I also knew that I was in the best of hands when it came to my medical care. That is such a good feeling to have.


I guess the moral of this story is that you shouldn't blow something off! If you feel you need to go to the doctor or if a friend or family member encourages you to go- go. It may be nothing but it could be something. I never realized how serious this was until it was explained to me by my surgeon- after the surgery took place. Funny how a "miscellaneous part" can cause so many problems. LOL!!!


~Heather:)

I apologize for whatever grammatical errors, misspellings, or goof-ups I may have made in this post. I will blame it on the percocet. :)